How to balance it all? I know many of my followers already know where we are right now. No one ever imagines that they'd be spending Christmas in the hospital. I have so much to say, yet the strength to put all my thoughts into words is just not there right now. If you have facebook search for "Thao Nardoni Updates", a group we have to share what is going on with my sweet 5 year old, Thao. I've said often in my blog, he's stubborn, strong willed and very adventurous. God gave him that extra bit of will for this reason, I'm now convinced. He's a fighter, that's for sure!
This Christmas Eve morning I've been reading Narnia to my quiet boy, with the sound of machines doing everything that his body can't right now. I've been trying to remember what normal was like. My favorite memory at this moment: "Mom can you play my favorite song?" Then watching him climb up into his favorite chair and sit and sing Here I am to Worship while Ava danced and sang along.
I keep telling myself I'm going to write down all these thoughts, these memories, but I just haven't been able to. I pray that I can remember.
If I just have one more day to bring my baby home, he'll get donuts for breakfast. He'll get to paint the living room his skin color so he's camouflaged. He'll get to pick out a kitten. I may even let him play out in the snow. We'll bake, whatever creations he concocts. We'll experiment. We'll build forts. Maybe we'll just bring the snow inside. He can jump on the couch if he wants.
God is giving us incredible peace, but he never said it would be easy. Thao knows Jesus' love, his peace, and feels his strong arms around him, probably more than any of us could even imagine. I keep waking up with the song "I Surrender All" going through my head. I love my Thao, but God loves him more.
Thank you for your prayers. We need them as we desperately try to balance normalcy for Ava and Liam and strength for Thao.
This Christmas Eve morning I've been reading Narnia to my quiet boy, with the sound of machines doing everything that his body can't right now. I've been trying to remember what normal was like. My favorite memory at this moment: "Mom can you play my favorite song?" Then watching him climb up into his favorite chair and sit and sing Here I am to Worship while Ava danced and sang along.
I keep telling myself I'm going to write down all these thoughts, these memories, but I just haven't been able to. I pray that I can remember.
If I just have one more day to bring my baby home, he'll get donuts for breakfast. He'll get to paint the living room his skin color so he's camouflaged. He'll get to pick out a kitten. I may even let him play out in the snow. We'll bake, whatever creations he concocts. We'll experiment. We'll build forts. Maybe we'll just bring the snow inside. He can jump on the couch if he wants.
God is giving us incredible peace, but he never said it would be easy. Thao knows Jesus' love, his peace, and feels his strong arms around him, probably more than any of us could even imagine. I keep waking up with the song "I Surrender All" going through my head. I love my Thao, but God loves him more.
Thank you for your prayers. We need them as we desperately try to balance normalcy for Ava and Liam and strength for Thao.